Rare Blood Community Liaison - Rio Grande

About the Department

The Rare Disease organization leads all US Commercial efforts for Novo Nordisk’s Rare Disease portfolio. The Rare Disease portfolio includes medical treatments, customer solutions, and devices across multiple Therapy Areas including Rare Bleeding Disorders, Rare Endocrine Disorders, Rare Renal Disorders, and Hemoglobinopathies (Sickle Cell Disease & Beta Thalassemia), as well as new products in the pipeline.

The Rare Disease organization is responsible for leading the enterprise approach to achieving our patient care goals and financial objectives, devising and delivering transformative patient and customer experiences, addressing unmet needs across the communities we serve, and setting the industry standard for extraordinary execution. The team members collaborate and partner cross functionally with multiple functions and groups throughout the US organization, Clinical Development, Research & Early Development, other affiliates, and the Global HQ teams. 

We are looking for highly motivated individuals who are strategic and bold thinkers, passionate and dedicated to driving change in Rare Disease, patient focused, strong collaborators, and inclusive leaders, as we embark on shaping our exciting future and improving the lives of more patients than ever before.

The Position

Attends, and when possible assists with planning events held by patient organizations in his/her territory, and represents Novo Nordisk, Inc. (NNI) at selected national events hosted by those patient organizations. Events may include fundraising/volunteering efforts along with representation at educational meetings. Collaborates with Market Access and Government Affairs teams when advocacy issues arise and as appropriate. Cultivates relationships with patients, caregivers and other community stakeholders by participating in and assisting with community events on behalf of NNI. Establishes and manages relationships with key patient organizations, including local chapters of the National Hemophilia Foundation and, Hemophilia Federation of America chapters etc. Regularly communicates perspectives, findings and insights to Rare Disease leadership through informal and formal (e.g., oral and written presentations) mechanisms Includes sharing insights and competitive intelligence within the hemophilia area. Represents NNI to the Hemophilia patient community and patient organizations (e.g., local hemophilia chapters) with the goal of increasing patient awareness of Novo Nordisks hemophilia products and patient support programs in an assigned territory. Serves as the center of coordination for patient-related activities across patient community and the broader NNI organization (both within Rare Disease and relevant functions outside of Rare Disease) to ensure that learnings from patients, caregivers and other stakeholders are incorporated into the Rare Disease strategy and business decisions.

Relationships

Helps identify when home office support and presence is needed at larger community based events such as chapter meetings and other functions. Member of the Community Engagement Field Force and has interactions with Rare Blood Marketing to provide feedback on development of direct-to-patient materials, tools and programs. Reports directly to Rare Blood Community Liaison Leader and interacts with other Rare Blood Community Liaisons (RBCL)and other relevant NNI functions including Government Affairs

Essential Functions

• Develops direct relationships with patients/caregivers and other haemophilia community members including haemophilia organizations and chapters, state and local advocacy groups
• Executes patient and caregiver educational meetings / exhibits at chapter events, home care meetings, patient conventions, patient dinners, support at community events/camps, etc. about haemophilia and NNI products and services within relevant guidelines
• Plans and conducts meetings with state and local chapters with the goal of educating patients, caregivers, and other stakeholders on NNIs products and services within relevant guidelines
• Promotes NNI haemophilia products and services to patients and caregivers within the haemophilia community
• Coordinates with Community Engagement Leadership and Marketing team, regularly sharing insights on how NNI can continue to improve its offering to the haemophilia community
• Coordinates with other RBCLs to prepare internal communications to the Rare Disease team, keeping internal stakeholders attuned to the pulse of the community
• Ensures all communications are HIPAA compliant
• Identifies for home office, opportunities for increased levels of presence, support and engagement
• Proactively works to continually deepen NNIs relationship with State and local advocacy organizations (e.g. local chapters of NHF, HFA, etc.), engaging with Government Affairs when necessary
• Represents NNI at local and national haemophilia events
• Supports planning efforts for community fundraising activities as needed
• When necessary, directs questions from the community to the appropriate NNI channel (e.g., MIR, NovoCare, , etc.)
• Utilizes discretionary budget for maximum impact on community engagement

Physical Requirements

75-90% overnight travel required. Driver must maintain a valid driver’s license. Must be in good standing by not exceeding the Novo Nordisk points threshold assigned based on review of Motor Vehicle Records.

Qualifications

• At least 3 years of relevant experience required. Relevant experience may include haemophilia care, treatment or advocacy, business to business or pharmaceutical sales experience; pharmaceutical sales experience preferred
• Marketing or clinical experience preferred
• A Bachelors degree required, scientific degree preferred

We commit to an inclusive recruitment process and equality of opportunity for all our job applicants.

At Novo Nordisk, we're not chasing quick fixes – we're creating lasting change for long-term health. For over 100 years, we've been driven by a single purpose: to defeat serious chronic diseases and help millions of people live healthier lives. This dedication fuels our constant curiosity and inspires us to push the boundaries of what's possible in healthcare. We embrace diverse perspectives, seek out bold ideas, and build partnerships rooted in shared purpose. Together, we're making healthcare more accessible, treating and defeating diseases, and pioneering solutions that create change spanning generations. When you join us, you become part of something bigger – a legacy of impact that reaches far beyond today.

Novo Nordisk is an equal opportunity employer. Qualified applicants will receive consideration for employment without regard to race, ethnicity, color, religion, sex, gender identity, sexual orientation, national origin, disability, protected veteran status or any other characteristic protected by local, state or federal laws, rules or regulations.

If you are interested in applying to Novo Nordisk and need special assistance or an accommodation to apply, please call us at 1-855-411-5290. This contact is for accommodation requests only and cannot be used to inquire about the status of applications.